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BCRP_DataDictionary.txt
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Category Sub-Category Variable Name Label Variable Type Coding
Core Identification/Dates subject_id Individual ID combining study and person info Character "Study ID + ""_"" + person ID (e.g.: XX_XXX)"
Core Identification/Dates id Individual ID (original from study) Character Study specific person ID
Core Identification/Dates record_date Date of data/sample collection Date "dd/mm/yyyy
08/08/8000 - Missing/Unknown"
Core Identification/Dates qcycle Questionnaire cycle (repeated measures) Categorical "0 - Baseline
1 + - Follow up cycle #
888 - Missing"
Core Identification/Dates baseline Baseline record indicator Categorical "0 - Record taken subsequent to baseline
1 - Record taken at baseline"
Core Identification/Dates lastfollowup Last follow up indicator Categorical "0 - Record date is prior to last follow up
1 - Record date is date of last follow up"
Core Demographics birth_year Birth year Date (yyyy) "yyyy
8888- Missing/Unknown"
Core Demographics sex Sex Categorical "0 - Female
1 - Male"
Core Demographics age Age at record_date Integer Age in years
Core Demographics race Race (US OMB categories) Categorical "1 - White
2 - Black/African American
3 - Asian
4 - Native Hawaiin/ Pacific Islander
5 - American Indian/Alaska Native
6 - Other, including multiracial
888 - Missing"
Core Demographics ethnicity Ethnicity (US OMB categories) Categorical "0 - Non-Hispanic/Non-Latino
1 - Hispanic/Latino
888 - Missing"
Core Demographics education Highest level education attained Categorical "1 - Less than high school
2 - High School
3 - Some college education
4 - University (degree)
5 - Graduate school (some or degree)
888 - Unknown/Missing"
Core Demographics AJAncestry Ashkenazi Jewish Ancestry Categorical "0 - No
1 - Yes
888 - Missing"
Core Anthropometry height Height (cm) Decimal "Height in cm
888 - Missing"
Core Anthropometry weight Weight (kg) Decimal "Weight in kg
888 - Missing"
Core Anthropometry bmi Body Mass Index (BMI) (kg/m2) Decimal "BMI in kg/m2
888 - Missing"
Core Anthropometry waist Waist Circumference (cm) Decimal "Waist circumference in cm
888 - Missing"
Core Anthropometry hip Hip Circumference (cm) Decimal "Hip circumference in cm
888 - Missing"
Core Anthropometry whr Waist to hip ratio Decimal "Waist-to-hip ratio
888 - Missing"
Core Anthropometry bmi_earlyadult Body Mass Index (BMI) (kg/m2) age 18-24 Decimal "BMI in kg/m2
888 - Missing"
Core Alcohol and Tobacco alcohol_status Drinking status Categorical "1 - Current
2 - Former
3 - Ever (unknown current or former)
4 - Never
888 - Missing/Unknown"
Core Alcohol and Tobacco alcohol_init Age of initiation of regular alcohol drinking Integer "Age in years
777 - Nondrinker
888 - Missing"
Core Alcohol and Tobacco alcohol_amt Current alcohol intake (grams/day) Decimal "Value
888 - Missing"
Core Alcohol and Tobacco alcohol_stop Age of cessation of regular alcohol drinking Integer "Age in years
666 - N/A (no stop date)
777 - Nondrinker
888 - Missing"
Core Alcohol and Tobacco alcohol_dur Duration of regular alcohol drinking in years Decimal "Years of alcohol use
777 - Nondrinker
888 - Missing"
Core Alcohol and Tobacco smoking_init Age of initiation of smoking Integer "Age in years
777 - Nonsmoker
888 - Missing"
Core Alcohol and Tobacco smoking_amt Current amount smoked (cig/day) Decimal "Value
888 - Missing"
Core Alcohol and Tobacco smoking_dur Duration of smoking in years Decimal "Years of regular smoking
777 - Nonsmoker
888 - Missing/Unknown"
Core Alcohol and Tobacco smoking_status Smoking status Categorical "1 - Current
2 - Former
3 - Ever (unknown current or former)
4 - Never
888 - Missing/Unknown"
Core Alcohol and Tobacco smoking_stop Age of cessation of smoking Integer "Age in years
666 - N/A (current smoker)
777 - Nonsmoker
888 - Missing/Unknown"
Core Personal and Family Health History fhx_fdr_brca Family history of breast cancer (first degree relative) Categorical "0 - No
1 - Yes
888 - Missing"
Core Personal and Family Health History Biopsies_yesno "Ever had a breast biopsy, excluding biopsies leading to diagnosis of cancer in cases" Categorical "0- No
1- Yes
888- Missing"
Core Personal and Family Health History Biopsies_number "Number of breast biopsies, excluding biopsies leading to diagnosis of breast cancer in cases" Integer "number
888 - Missing/Unknown"
Core Personal and Family Health History BBD_history History of benign breast disease Categorical "0 - No
1 - Yes
888 - Missing/Unknown"
Core Personal and Family Health History BBD_number Number of benign breast disease diagnoses Integer "number 0-4
5 - more than 4
888 - Missing/Unknown"
Core Personal and Family Health History BBD_type1 Type of benign breast disease for first BBD diagnosis Categorical "1 - non-proliferative disease
2 - proliferative disease without atypia
3 - atypical hyperplasia
777 - NA
888 - Missing/Unknown"
Core Personal and Family Health History BBD_year1 Year of diagnosis of first benign breast disease diagnosis integer "yyyy
7777- NA
8888 - Missing/Unknown"
Core Personal and Family Health History BBD_type2 Type of benign breast disease for second BBD diagnosis Categorical "1 - non-proliferative disease
2 - proliferative disease without atypia
3 - atypical hyperplasia
777 - NA
888 - Missing/Unknown"
Core Personal and Family Health History BBD_year2 Year of diagnosis of second benign breast disease diagnosis Date "yyyy
7777- NA
8888 - Missing/Unknown"
Core Personal and Family Health History BBD_type3 Type of benign breast disease for third BBD diagnosis Categorical "1 - non-proliferative disease
2 - proliferative disease without atypia
3 - atypical hyperplasia
777 - NA
888 - Missing/Unknown"
Core Personal and Family Health History BBD_year3 Year of diagnosis of third benign breast disease diagnosis Date "yyyy
7777- NA
8888 - Missing/Unknown"
Core Personal and Family Health History BBD_type4 Type of benign breast disease for fourth BBD diagnosis Categorical "1 - non-proliferative disease
2 - proliferative disease without atypia
3 - atypical hyperplasia
777 - NA
888 - Missing/Unknown"
Core Personal and Family Health History BBD_year4 Year of diagnosis of fourth benign breast disease diagnosis Date "yyyy
7777- NA
8888 - Missing/Unknown"
Core Reproductive History agemenarche Age at menarche Decimal "Age in years
777 - Never had a period
888 - Missing/Unknown"
Core Reproductive History parous Parous or not Categorical "0 - Non-parous
1 - Parous
888 - Missing"
Core Reproductive History age_preg1 Age at first pregnancy (full-term) Decimal "Age in years
777 - Nonparous
888 - Missing/Unknown"
Core Reproductive History parity Number of pregnancies (full-term) Integer "0 +
888 - Missing/Unknown"
Core Reproductive History age_preg2 Age at second pregnancy (full-term) Decimal "Age in years
666- N/A (<2 pregnancies)
777 - Nonparous
888 - Missing/Unknwon"
Core Reproductive History age_preg3 Age at third pregnancy (full-term) Decimal "Age in years
666- N/A (<3 pregnancies)
777 - Nonparous
888 - Missing/Unknwon"
Core Reproductive History age_preg4 Age at fourth pregnancy (full-term) Decimal "Age in years
666- N/A (<4 pregnancies)
777 - Nonparous
888 - Missing/Unknwon"
Core Reproductive History age_preg5 Age fifth first pregnancy (full-term) Decimal "Age in years
666- N/A (<5 pregnancies)
777 - Nonparous
888 - Missing/Unknwon"
Core Reproductive History age_preg6 Age sixth first pregnancy (full-term) Decimal "Age in years
666- N/A (<6 pregnancies)
777 - Nonparous
888 - Missing/Unknwon"
Core Reproductive History age_preg7 Age at seventh pregnancy (full-term) Decimal "Age in years
666- N/A (<7 pregnancies)
777 - Nonparous
888 - Missing/Unknwon"
Core Reproductive History age_preg8 Age at eighth pregnancy (full-term) Decimal "Age in years
666- N/A (<8 pregnancies)
777 - Nonparous
888 - Missing/Unknwon"
Core Reproductive History age_preg9 Age at ninth pregnancy (full-term) Decimal "Age in years
666- N/A (<9 pregnancies)
777 - Nonparous
888 - Missing/Unknwon"
Core Reproductive History age_preg10 Age at tenth pregnancy (full-term) Decimal "Age in years
666- N/A (<10 pregnancies)
777 - Nonparous
888 - Missing/Unknwon"
Core Reproductive History breastfeed Ever breastfeed Categorical "0 - Never Breastfed
1 - Ever Breastfed
777- Nonparous
888 - Missing/Unknown"
Core Reproductive History breastfeed_dur Cumulative lifetime duration of breastfeeding (months) Decimal "Time in months
666 - NA (didn't breastfeed)
777 - Nonparous
888 - Missing/Unknown"
Core Reproductive History breastfeed_dur_b1 Duration of breastfeeding (months) for first birth Decimal "Time in months
666 - NA (didn't breastfeed)
777 - Nonparous
888 - Missing/Unknown"
Core Reproductive History breastfeed_dur_b2 Duration of breastfeeding (months) for second birth Decimal "Time in months
666 - NA (didn't breastfeed)
777 - Nonparous
888 - Missing/Unknown"
Core Reproductive History breastfeed_dur_b3 Duration of breastfeeding (months) for third birth Decimal "Time in months
666 - NA (didn't breastfeed)
777 - Nonparous
888 - Missing/Unknown"
Core Reproductive History breastfeed_dur_b4 Duration of breastfeeding (months) for fourth birth Decimal "Time in months
666 - NA (didn't breastfeed)
777 - Nonparous
888 - Missing/Unknown"
Core Reproductive History breastfeed_dur_b5 Duration of breastfeeding (months) for fifth birth Decimal "Time in months
666 - NA (didn't breastfeed)
777 - Nonparous
888 - Missing/Unknown"
Core Reproductive History breastfeed_dur_b6 Duration of breastfeeding (months) for sixth birth Decimal "Time in months
666 - NA (didn't breastfeed)
777 - Nonparous
888 - Missing/Unknown"
Core Reproductive History breastfeed_dur_b7 Duration of breastfeeding (months) for seventh birth Decimal "Time in months
666 - NA (didn't breastfeed)
777 - Nonparous
888 - Missing/Unknown"
Core Reproductive History breastfeed_dur_b8 Duration of breastfeeding (months) for eighth birth Decimal "Time in months
666 - NA (didn't breastfeed)
777 - Nonparous
888 - Missing/Unknown"
Core Reproductive History breastfeed_dur_b9 Duration of breastfeeding (months) for ninth birth Decimal "Time in months
666 - NA (didn't breastfeed)
777 - Nonparous
888 - Missing/Unknown"
Core Reproductive History breastfeed_dur_b10 Duration of breastfeeding (months) for tenth birth Decimal "Time in months
666 - NA (didn't breastfeed)
777 - Nonparous
888 - Missing/Unknown"
Core Reproductive History ocuse_ever Ever use of oral contraceptives Categorical "0 - Never used oral contraceptives
1 - Ever used oral contraceptives
888 - Missing/Unknown"
Core Reproductive History ocuse_current Current OC use (at record_date) Categorical "0 - No
1 - Yes
888 - Missing/Unknown"
Core Reproductive History ocuse_dur Lifetime duration of oral contraceptive use in months Decimal "Time in months
777 - NA (never user)
888 - Missing/Unknown"
Core Reproductive History ocuse_start Age at first use of oral contraceptive Decimal "Age in years
777 - NA (never user)
888 - Missing/Unknown"
Core Reproductive History ocuse_stop Age at last use of oral contraceptive Decimal "Age in years (if stopped before reference date)
666 - Current user
777 - NA (never user)
888 - Missing/Unknown"
Core Reproductive History othcontracep_ever Use of other types of hormonal contraceptives Categorical "0 - Never
1 - Ever
888 - Missing/Unknown"
Core Reproductive History othcontracep_current Current use of other types of hormonal contraceptives Categorical "0 - No
1 - Yes
888 - Missing/Unknown"
Core Reproductive History meno_status Menopausal status Categorical "1 - Postmenopausal
2 - Premenopuasal
3 - Perimenopausal/other
888 - Missing/Unknown"
Core Reproductive History meno_age Age at menopause in years Decimal "Age in years
777 - Premenopausal at questionnaire
888 - Missing/Unknown"
Core Reproductive History meno_reason Reason for menopause Categorical "1 - Natural
2 - Surgical
3 - Radiation/Chemotherapy induced
4 - Medication
5 - Artificial/Induced (no detail)
777 - NA (premenopausal)
888 - Missing/Unknown"
Core Reproductive History hrtuse Use of any hormone replacement therapy Categorical "0 - Never used hormonal replacement therapy
1 - Current use
2 - Former use
3 - Ever used (unknown current or former)
888 - Missing/Unknown"
Core Reproductive History hrt_dur Lifetime duration of hormonal replacement therapy in months Decimal "Time in months
666 - NA (premenopausal)
777 - Never user
888 - Missing/Unknown"
Core Reproductive History hrtuse_ep Use of E+P hormone replacement therapy Categorical "0 - Never used hormonal replacement therapy
1 - Current use
2 - Former use
3 - Ever used (unknown current or former)
888 - Missing/Unknown"
Core Reproductive History hrtep_dur Lifetime duration of E+P hormonal replacement therapy in months Decimal "Time in months
666 - NA (premenopausal)
777 - Never user
888 - Missing/Unknown"
Core Reproductive History hrtuse_eonly Use of E only hormone replacement therapy Categorical "0 - Never used hormonal replacement therapy
1 - Current use
2 - Former use
3 - Ever used (unknown current or former)
888 - Missing/Unknown"
Core Reproductive History hrteonly_dur Lifetime duration of E only hormonal replacement therapy in months Decimal "Time in months
666 - NA (premenopausal)
777 - Never user
888 - Missing/Unknown"
Core Physical Activity pa_mets Leisure time physical activity (MET hrs/wk) Decimal "MET hrs/wk
888 - Missing/Unknown"
Core Physical Activity pa_pct Leisure time physical activity (percentile) Integer "Percentile
888 - Missing/Unknown"
Core Screening History screen_ever Ever had a screening mammogram Categorical "0 - Never
1 - Ever
888 - Missing/Unknown"
Core Screening History screen_start Age at first screening mammogram Decimal "Age in years
777 - Never screened
888 - Unknown/Missing"
Core Screening History lastscreen_year Year of last screening mammogram Integer "YYYY
777 - Never screened
888 - Unknown/Missing"
Mammographic density Mammographic density Mam_Qdate Date mammogram questionnairre data collected Date "dd/mm/yyyy
08/08/8000 - Missing/Unknown"
Mammographic density Mammographic density MamYear Year of mammogram Date "yyyy
8888 - Missing/Unknown"
Mammographic density Mammographic density MamAge Age at mammogram Decimal "Age in years
888 - Missing/Unknown"
Mammographic density Mammographic density MamBMI BMI at time of mammogram Decimal "BMI in kg/m2
888 - Missing/Unknown"
Mammographic density Mammographic density MamMenoStat Menopausal status at mammogram Categorical "1 - Premenopausal
2 - Postmenopausal
3 - Perimenopausal
888 - Missing/Unknown "
Mammographic density Mammographic density MamHRTCurrent Current use of HRT (or within 6 months prior to mammogram) Categorical "0 - No (or duration <3 mo)
1 - Yes (duration >3 mo)
888 - Missing/Unknown"
Mammographic density Mammographic density MamType Digital vs Analogue Categorical "1 - Digital
2 - Analogue
888 - Missing/Unknown"
Mammographic density Mammographic density MamProcess "Raw (""For Processing"") vs Processed (""For Presentation"")" Categorical "1 - Raw
2 - Processed
777 - NA
888 - Missing/Unknown"
Mammographic density Mammographic density ThreshPkg Thresholding package used Categorical "1 - Cumulus
2 - Other
888 - Missing/Unknown"
Mammographic density Mammographic density ThreshPkg_detail "Thresholding package used if ""other""" Character "Free text
777 - NA
888 - Missing/Unknown"
Mammographic density Mammographic density VolDenSoftware Volumetric density software used Categorical "1 - Volpara
2 - Quantra
3 - SXA
4 - Other
888 - Missing/Unknown"
Mammographic density Mammographic density VolDenSoftware_detail "Volumetric density software used if ""other""" Character "Free text
777 - NA
888 - Missing/Unknown"
Mammographic density Mammographic density PDArea_A Percent density from thresholding method on corresponding image "0-100, 777=NA, 888=DK" numerical with decimals
Mammographic density Mammographic density DenArea_A Absolute dense area from mammogram "cm2, 777=NA, 888=DK" numerical with decimals
Mammographic density Mammographic density NonDArea_A Absolute nondense area from mammogram (Total area minus dense area) "cm2, 777=NA, 888=DK" numerical with decimals
Mammographic density Mammographic density MamDensity BIRADS density category (left & right average) Categorical "1 - Fatty
2 - Scattered areas
3 - Heterogenously dense
4 - Extremely dense
888 - Missing/Unknown"
Incident Breast Cancer Diagnostic dxdate_primary1 Year of diagnosis of 1st primary breast cancer Integer "yyyy
7777- NA
8888 - Missing/Unknown"
Incident Breast Cancer Diagnostic detection_primary1 Mode of detection of 1st primary breast cancer Categorical "1 - Screen-detected
2 - Non-screen detected
888 - Missing/Unknown"
Incident Breast Cancer Diagnostic detection_detail_primary1 Details on mammogram detection Categorical "1 - Mammography
2 - Sonography
3 - Self-detected by palpation
4 - Medical exam
777 - NA
888 - Missing/Unknown"
Incident Breast Cancer Diagnostic invasive_primary1 Invasive or insitu for 1st primary breast cancer Categorical "1 - Invasive
2 - Insitu
888 - Missing/Unknown"
Incident Breast Cancer Diagnostic dxdate_primary2 Year of diagnosis of 2nd primary breast cancer Integer "yyyy
7777- NA
8888 - Missing/Unknown"
Incident Breast Cancer Diagnostic detection_primary2 Mode of detection of 2nd primary breast cancer Categorical "1 - Screen-detected
2 - Non-screen detected
888 - Missing/Unknown"
Incident Breast Cancer Diagnostic detection_detail_primary2 Details on mammogram detection Categorical "1 - Mammography
2 - Sonography
3 - Self-detected by palpation
4 - Medical exam
777 - NA
888 - Missing/Unknown"
Incident Breast Cancer Diagnostic invasive_primary2 Invasive or insitu breast cancer for 2nd primary breast cancer Categorical "1 - Invasive
2 - Insitu
777 - NA
888 - Missing/Unknown"
Incident Breast Cancer Pathology stage_primary1 TNM stage for first primary tumor Categorical "0 - Insitu
1,2,3,4
777 - NA
888 - Missing/Unknown"
Incident Breast Cancer Pathology grade_primary1 Histopathological grade for first primary tumor Categorical "1 - Well-differentiated
2 - Moderately differentiated
3 - Poorly/Undifferentiated
777 - NA
888 - Missing/Unknown"
Incident Breast Cancer Pathology size_primary1 Tumor size (maximum diameter in mm) Decimal "Diameter in mm
777 - NA
888= Missing/Unknown"
Incident Breast Cancer Pathology sizecat_primary1 "Tumor size of first primary, categorized" Categorical "1 - >0 to <=2cm
2 - >2cm and <=5cm
3 - >5cm
777 - NA
888 - Missing/Unknown"
Incident Breast Cancer Pathology er_primary1 ER status of first primary tumor Categorical "0 - Negative
1 - Positive
888 - Missing/Unknown"
Incident Breast Cancer Pathology pr_primary1 PR status of first primary tumor Categorical "0 - Negative
1 - Positive
888 - Missing/Unknown"
Incident Breast Cancer Pathology her2_primary1 HER2 status of first primary tumor Categorical "0 - Negative
1 - Positive
888 - Missing/Unknown"
Incident Breast Cancer Pathology ki67_primary1 Ki67 expression (% positive cells) for first primary tumor Integer "Percent (0-100)
777- NA
888 - Missing/Unknown"
Incident Breast Cancer Pathology ki67cat_primary1 "Ki67 expression level for first primary tumor, dichotomous (include only if continuous unavailable)" Categorical "0 - Low
1 - High
777 - NA
888 - Missing/Unknown"
Incident Breast Cancer Pathology stage_primary2 TNM stage for second primary tumor Categorical "0,1,2,3,4
777 - NA
888 - Missing/Unknown"
Incident Breast Cancer Pathology grade_primary2 Histopathological grade for second primary tumor Categorical "1 - Well-differentiated
2 - Moderately differentiated
3 - Poorly/Undifferentiated
777 - NA
888 - Missing/Unknown"
Incident Breast Cancer Pathology size_primary2 Tumor size second primary (maximum diameter in mm) Decimal "Diameter in mm
777 - NA
888= Missing/Unknown"
Incident Breast Cancer Pathology sizecat_primary2 "Tumor size of second primary, categorized" Categorical "1 - <0 to <=2cm
2 - >2cm and <=5cm
3 - >5cm
777 - NA
888 - Missing/Unknown"
Incident Breast Cancer Pathology er_primary2 ER status of second primary tumor Categorical "0 - Negative
1 - Positive
888 - Missing/Unknown"
Incident Breast Cancer Pathology pr_primary2 PR status of second primary tumor Categorical "0 - Negative
1 - Positive
888 - Missing/Unknown"
Incident Breast Cancer Pathology her2_primary1 HER2 status of second primary tumor Categorical "0 - Negative
1 - Positive
888 - Missing/Unknown"
Incident Breast Cancer Pathology ki67_primary2 Ki67 expression (% positive cells) for second primary tumor Integer "Percent (0-100)
777- NA
888 - Missing/Unknown"
Incident Breast Cancer Pathology ki67cat_primary2 "Ki67 expression level for second primary tumor, dichotomous, (include only if continuous is unavailable)" Categorical "0 - Low
1 - High
777 - NA
888 - Missing/Unknown"